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What is the prognosis of living with CLL beyond 20 years?

Blood Cancers & Disorders | Last Active: Jun 5, 2024 | Replies (7)
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@traillens47

Thank you for understanding Lori and for the info about options. These speed bumps in life seem to come out of left field when you have other plans. I'll work on looking beyond tomorrow but intend to be my own best advocate and research whatever recommendations are made. IMO, a lot of PA's aren't qualified to be entrusted with the care of oncology patients. There are too many nuances to the disease.
Thanks for the pep talk and I'll keep you in the loop.
You deserve an atta'girl for battling back from a precarious condition. ✨ 🏅🎉
Carol

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Replies to "Thank you for understanding Lori and for the info about options. These speed bumps in life..."
Lori, Volunteer Mentor | @loribmt | May 29, 2024

Hi Carol, YES by all means remain your own advocate! I’m with you in that camp! But I just wanted you to be aware that there are options ahead for you if you need treatment.

I also agree with you, that when it comes to diagnosing or being in charge of treatment for my cancer, I insisted on my hematologist oncologist. Followups were sometimes handled by a PA but then before I left the office, my case was discussed with my doctor.

And you’re right about coming out of left field when you least expect it with these blood diseases. I had the same thing with AML. I went from living life 100 mph in the fast lane to crawling at .1 mph within 3 weeks time. But that wasn’t the end of my life story and this won’t be yours either. And I am all about pep talks. LOL. So keep me in your loop!

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