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Autoimmune Diseases and Fatigue
Fatigue is probably intertwined with the definition of "illness", almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person's being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the "answer" it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren's, as well as I'm sure many others. So what I'm asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?
In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don't take for Sjogren's but rather for "Excessive Daytime Sleepiness" linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I've read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn't work for Sjogren's, for me at least. Since fatigue impacts a person's total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I'm sure.
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Thank you for that. I do get tired of having to research something in every post.
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1 ReactionNo idea what binding is.
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1 ReactionMay try these. Thanks.
All in with you on the magnesium. I've used Ancient Minerals Magnesium lotion for some time, however, it may help me get to sleep but not for the whole night. Adding magnesium tablets helps.
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1 Reaction@mayfleur another thing at night helps me is melatonin along with magnesium a d pain pill
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1 ReactionHello John, I am interested in your comment that toxic effects are a realm unto themselves. Do you have any resources about this that would help me understand more about toxic exposures?
Hello @cinnamon215, I'm not sure if @johnburns is still active on Connect but maybe I can help. Here are a few references that may provide you with more information.
Foundation for Peripheral Neuropathy - Toxins That Can Cause Peripheral Neuropathy
-- https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/toxins/
New York Dept of Health - What You Know Can Help You - An Introduction to Toxic Substances
-- https://www.health.ny.gov/environmental/chemicals/toxic_substances.htm
CDC - Registry of Toxic Effects of Chemical Substances (RTECS)
-- https://www.cdc.gov/niosh/docs/97-119/default.html
CDC - Skin Exposures and Effects
-- https://www.cdc.gov/niosh/topics/skin/default.html
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2 ReactionsIm grateful today for our weekend discussion groups makes the time go by faster and we get to know each other better Thanks for starting this Gratitude discussion group @debbraw
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4 ReactionsI watched a great documentary about autoimmune and tooth fillings especially root canals. It was amazing I often wonder about all of this.
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3 ReactionsHello John, I am so thankful for your response with all those references. I will certainly check them out! I appreciate you!
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