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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)Comment receiving replies
@catrena2024
I’m glad you found this page as well! I agree with you that it helps to hear the stories of other people with MGUS and I definitely find that Dr Google will scare you.
You’ve had a lot to deal with medically. Are you worried that it is all connected to the MGUS?
I was diagnosed with MGUS about three years ago. I have neuropathy in both feet and I have days when I am definitely low energy. Otherwise, I have been lucky so far. We have fellow travelers on this MGUS path who have had MGUS for many years and it has not progressed. Good news as well is that there are new treatment options that make progression less scary.
Are you receiving treatment in a cancer center? It sounds l Ike you are getting good support from your physician. Can you ask about the ratio?
Replies to "@catrena2024 I’m glad you found this page as well! I agree with you that it helps..."
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I have some kind of immune disorder as well they havent figured out what i been dealing with over a year as well ... I see a rheumatologist too...My cancer dr has told me there nothing to do for MGUS just said check it every 6 months and see if its turned into multiple myeloma thats it...I have neuropathy as well in feet in hands and all this being a hair stylist is hard . I been dealing with the MGUS over a year now and boy that bone barrow biopsy was no joke they numbed 3 times and I could still feel it .. I just wanted to get that over with lol ... and I'm gonna ask him about the ratio when I see him next Tuesday on my results . And thank you for replying.