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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Blood Cancers & Disorders | Last Active: Jun 9 1:13pm | Replies (181)
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@catrena2024

So glad I just found this page I always feel like I'm alone going through this MGUS ... my dr has told me much about it but results always say kappa light chains high and LAMBDA LIGHT CHAINS chains normal.. I dont see a ratio on mine ... I am now anemia and vitamin d and b 12 defficiency as well...Just always tired . I just had cancer removed from my face on tuesday may 21 2024.. and gallbladder last year in June .. I lost my Dad who I was so close to November 2021.. I just feel like i had no one to talk to about any of this. I hope someone can talk to me more on this MGUS ..I google but then that scares you more and dont really get any answers... well thanks to who reads this and sorry for rambling .. Have a blessed day ❤️

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Replies to "So glad I just found this page I always feel like I'm alone going through this..."
Patty, Volunteer Mentor | @pmm | May 28 9:15pm

@catrena2024
I’m glad you found this page as well! I agree with you that it helps to hear the stories of other people with MGUS and I definitely find that Dr Google will scare you.
You’ve had a lot to deal with medically. Are you worried that it is all connected to the MGUS?
I was diagnosed with MGUS about three years ago. I have neuropathy in both feet and I have days when I am definitely low energy. Otherwise, I have been lucky so far. We have fellow travelers on this MGUS path who have had MGUS for many years and it has not progressed. Good news as well is that there are new treatment options that make progression less scary.
Are you receiving treatment in a cancer center? It sounds l Ike you are getting good support from your physician. Can you ask about the ratio?

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