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How long from diagnosis of AML typically comes the BMT?
Blood Cancers & Disorders | Last Active: Jun 14 5:42am | Replies (35)Comment receiving replies
My Dr told me recently that my son was a 6/10, and there was a 10/10 that was in the testing faze. I'm hopeful for a cure and hope to be able to get back to my 'prior activities' before AML. is that even a possibility? to get back to what I did before.
Replies to "My Dr told me recently that my son was a 6/10, and there was a 10/10..."
Hi Susan! I’m in Tucson and also drive to Phoenix to see my Mayo doctor. My transplant for AML was in 2016 in Indiana. It was some rough going for a while, but I have recovered very well since then. I’m 59 now and went back to work full-time almost 6 years ago. I do have a mild GVHD and a few other post transplant conditions, but they are all well managed by my doctor. Transplant gave me my life back. I wouldn’t have survived without it.
I see my doctor every 3-4 months for my follow ups. Let me know if you are interested in chatting when we are both in Phoenix at the same time.
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Hi Susan, Before being diagnosed with AML at 65, I was very active, walked 10 miles daily, biked, exercised, had tons of hobbies and was always busy. AML clipped me off at the knees within 3 weeks and odds were not in my favor! But here I am, now 5 years post transplant, 70 years young, walking at least 7+ miles daily (time constraints, not energy related). and feeling as though nothing ever happened. 😉 My donor was a 20 year old male, 10/10 match, from the U.S. My husband jokes that I have more energy now than before. Not sure about that because I was always active but now, maybe I don’t take any moment for granted? I’m always doing something! But I do feel like I’m in my 20s!
The first few months post transplant can be challenging, especially for someone who is active. Recovery is a marathon, not a sprint and the fatigue can be frustrating. But most people I know are back to living pretty normal lives!
I have a couple of discussions you might like to read through. You’ll meet some of our other BMT members such as @alive, @edb1123 @kt2013 @jenmkr63 @timt347 @jrwilli1 (husband had transplant) @tkidd51 and most recently @katgob who is about a month post transplant.
Here are the links:
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours? https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
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Snapshots of hope: Life on the other side of transplant. https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
Having a BMT is the only potential cure for AML. Yes, it can come with risks and there is no guarantee . But it is our shot at a 2nd chance at life and well worth the effort.
I hope this gives you some encouragement!