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Gross hematuria (blood in urine): Can't find cause
Blood Cancers & Disorders | Last Active: Dec 14, 2025 | Replies (40)Comment receiving replies
Hi Carolak. I’m the person with cold agglutinin disease that sonieaml is referring to. I was diagnosed in 2015. Mine is secondary to lymphoma. Happy to snswer any questions you have about it. It’s extremely rare and most doctors have never treated or seen it before.
Replies to "Hi Carolak. I’m the person with cold agglutinin disease that sonieaml is referring to. I was..."
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@tobytink
Hi I've been off this site for awhile. Still having these episodes of hematuria. This time it's been 18 days. It seems each time gets a bit worse, lasts longer. I get no answers or much real concern with local drs. Am thinking of going to Mayo and see if they can help. Anyway hope you are doing well.