Connect
← Return to Does anyone else have MGUS?
Discussion
Comment receiving replies
@mikxtr
Oh okay. I went another direction. Here’s the way I look at it. MGUS is not cancer but I want a specialist who works with MGUS and Multiple Myeloma patients every day. I think about it like I do my colonoscopy (yuck, sorry!). I want the gal who has done thousands rather than the first year resident or general practitioner.
I also want someone who has had more than a quick blood disorders rotation in med school. Hematologists complete med school and three year residency then in addition do a 3 to 5 year fellowship of specialized training. Blood disorders are complex and can have bone and soft tissue implications.
With all due respect to my excellent PCP, I want a specialist to diagnose and possibly eventually treat my MGUS if my numbers get wanky or if it advances.
I’m really glad your MGUS is low risk. How often will you get blood analysis?
Replies to "@mikxtr Oh okay. I went another direction. Here’s the way I look at it. MGUS is..."
Connect
I agree with you. Unfortunately, the specialists in my system do not. They wanted 2 tests within 6 months and then every few years! I pushed for a 3rd test and if numbers are not changing then I'll concede to annually. My PCP does talk with the specialists and has been supportive but I do notice some holes in her knowledge. I'm trying to be patient but it's a gatekeeper system so I have to play the game for a while.