Low fiber diet for salvage RT to pelvic lymph node basin questions
Hi all. I’m hoping to hear from fellow PCa patients who endured a low fiber diet and can share ideas of what they ate while on the diet, and of course hear some helpful advice.
I had salvage RP January 2 024 after failed focal brachytherapy in 2020. Stage 3 oligometastic Gleason grade 9. Post RP PET-PSMA test showed likelihood of PCa in one obturator lymph node that couldn’t be reached in RP. The prostate bed will be avoided because of the brachytherapy in 2020. I’m currently on Orogovyx and Zytiga with undetectable PSA. 33 sessions of EBRT to the lymph node basin planeed to start 6/4/24. RO wants me on a low-fiber / low gas / low residue diet for the duration. 8 grams of fiber max per day.
No fresh fruit or vegetables, no caffeine drinks or alcohol, nothing made with tomatoes including spaghetti sause and bbq sauce. No products with whole grain or seeds including whole grain gpbread and pasta. No shrimp, lobster, sausages, hot dogs, sushi. No brown rice, quinoa, oatmeal, popcorn, etc. No dairy unless it’s lactose free. No. Soy milk.
Lotsa “no’s”!
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My RO was not as restrictive, with an emphasis on more meals with higher protein (healing, and elimination of any foods which typically cause gas (asparagus, beans, beer, broccoli, cabbage, corn, cucumbers, eggs, dairy, mushrooms, nuts, peppers and spicy foods). Drinking a lot of water was important. Given that everyone is different, I experimented to figure out which vegetables, fruits, pastas, etc that I could tolerate without gas. I also avoided foods that are labeled sugar-free, since these have ingredients that can cause gas. I used salmon and chicken for my non-plant protein, and didn’t have any gas problems. I was also able to tolerate tomato based pasta sauces (home made, cooked). I was also able to tolerate oat meal. For any food/drink cravings that might result in gas, I used Friday and Saturday evenings to experiment.
Thank you for sharing your experience. I’ll keep that in mind. Have an awesome day!
I have posted this previously: The perfect radiation diet is a double whopper w/ cheese and fries. Hold the pickle, lettuce and tomato. 3 meals daily.
And call your cardiologist🤭
More seriously though, I modified my otherwise very high fiber diet, which keeps me very regular (Amtrak should run with my regularity) and gave me the "mostly empty rectum". And I reduced, but did not eliminate, the fiber and most gas producing foods (limited brocolli and bye-bye black beans).
And did not get booted from the table (fortunately)✌️
Also took a GasX at night after eating. That might be my best suggestion.
Good luck. And apologies for my attempts at humor.
Thanks for your comments. I appreciate it. Love your sense of humor. Laughter is the best medicine! Best wishes for success on your journey with PCa.
@michaelcharles By "radiation diet," did you mean "diet from beginning to end of radiation treatment"? Before giving me my Orgovyx (ADT) prescription, two weeks prior to start of my SBRT radiation, the pharmacist prescribed me a diet (foods to avoid). Near the end of my 5-fraction treatment, I asked my oncologist how long I need to follow the diet. I was told as long as I'm in Orgovyx; we'll if can stop AT after 8 or 12 months. Is this diet too restrictive compared to other pharmacists and radiation oncologists recommend?
Radiation diet to me meant while you were undergoing radiation. Had nothing to do with Orgovyx or other ADT regimens.
Because gas is an issue for radiation treatment (mostly full bladder; mostly empty bowels), the diet for tx has no fiber, which is different from how I usually eat.
So I joke that a double whopper with cheese and fries, hold the pickle and lettuce, 3 times daily, is perfect.
I know of no dietary recommendations related to ADT other than try to a "healthy" diet.
Best wishes.
I cannot imagine what your oncologist was thinking - that just makes no sense. Sometimes drs don’t listen closely when you ask questions and simply blurt things out.
I am sorry they have confused you on this but ADT and diet have ZERO in common.
Phil