Anyone have multiple pulmonary embolisms and autoimmune conditions?

Posted by mmorey52 @mmorey52, May 24 7:46am

I have giant cell arthritis and Sjogren syndrome since February I have had five pulmonary embolisms two of them have been while I was on blood thinners has anyone experienced this?

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@dlydailyhope

@teddyz and @mmorey52
I looked at my autoimmune lab work report from Exagen Diagnostics (in CA) and it shows 4 blood tests under the Antiphospholipid Syndrome Auto-Antiboidies category:

1.
Anti-Cardiolipin IgM (Ref. Range ELISA: < 20 CU Normal, 20+ CU Positive)

2.
Anti-Cardiolipin IgG (same Ref. Range as 1.)

3.
Anti-Beta2 Glycoprotein 1 IgM (Ref. Range ELISA: < 21 CU Negative, 21+ Positive)

4.
Anti-Beta2 Glycoprotein 1 IgG (same Ref. Range as 3.)

Hope this helps. Good luck!

~Dina
P.S. I am going to try the suggestions for swimming “walking” and other water exercises. I am opening my pool this week for my teenage son and I should use it myself for at home physical therapy. Thanks for the idea!

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Thank you for the info. I did check all those tests and my hematologist did them all honey. A pool in your backyard is a blessing in my World. Not only will you get great non-impact exercise but you will feel so good. We had one in New York and we only used it a maximum of four months. We moved to Texas to be with my daughter and my husband refuses to put one, even if we could use it 10 months out of the year, go figure great keep in touch
Marie

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