Nightmares and autoimmune flares

Posted by Rubyslippers @triciaot, May 27 12:28pm

This study is new - maybe helpful to you? I follow autoimmune related research because a family member has JDM, juvenile Dermatomyositis. I’m not sure if this would apply to JDM but thought I’d share it for those with Lupus.
Have you noticed if nightmares precipitate a flare?
https://neurosciencenews.com/nightmares-lupus-neurology-26178/

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seniormed | @seniormed | May 27 12:39pm

Very interesting and pertinent to systemic inflammation
affecting every organ system. Hope our physicians are
aware of the correlation. Thanks.

Becky, Volunteer Mentor | @becsbuddy | May 27 8:41pm

@triciaot Very interesting article . How did you find it? Hopefully, we’ll hear from some of the members with SLE. Thank you very much for this contribution!

Rubyslippers | @triciaot | May 27 8:56pm

I signed up to get the latest news from Neuroscience News on topics that interest me. I don’t remember who recommended the site. I usually only sign up with sites that provide good research. Science Direct is another site that I follow.

About: NeuroscienceNews.com
Neuroscience News is an independent open access science magazine. Since 2001, we have featured neuroscience research news from labs, universities, hospitals and news departments around the world. Topics include brain research, AI, psychology, neuroscience, mental health and neurotech.

Becky, Volunteer Mentor | @becsbuddy | May 27 9:26pm

In reply to @triciaot "I signed up to get the latest news from Neuroscience News on topics that interest me...." + (show)

@triciaot Just one more question-you used the term ‘we’; are you a staff member?

Rubyslippers | @triciaot | May 27 10:37pm

In reply to @becsbuddy "@triciaot Just one more question-you used the term ‘we’; are you a staff member?" + (show)

No. Sorry, I should have put quotes on that. It was directly from info they share on their site.

slkanowitz | @slkanowitz | May 28 7:15am

I have lupus and my lupus support group leader just sent this article to our whole group. I had nightmares and night terrors early in my course before I was on adequate treatment. They were frequent and lasted for months/years but I no longer have them since treatment is keeping my disease in check. Others in my group reported that they had nightmares before flares. It makes sense as the brain can be inflamed in lupus. I do hope physicians and patients become aware of this correlation.

Rubyslippers | @triciaot | May 28 7:37am

I think that it would be really helpful to use the term “daymare” for the episodes that happen during the day. Relating it to the inflammation process in lupus might differentiate it from having a mental illness. One disease at a time, thank you!

Quote from article (link in previous post):
“ The study interviewers found that using the term ‘daymares’ to talk about hallucinations often led to a ‘lightbulb’ moment for patients, and they felt that it was a less frightening and stigmatised word.

A patient from England said: “[When] you said that word daymare and as soon as you said that it just made sense, it’s like not necessarily scary, it’s just like you’ve had a dream and yet you’re sitting awake in the garden…”

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