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What treatments are available for ampulla dysplasias?
Cancer | Last Active: May 31 1:02pm | Replies (17)Comment receiving replies
patient not being treated at Mayo clinic. Her specimen sent to Mayo for second reading. Her most recent tissue taken on 4/18/2024 via EUS at the joint of ampulla and pancreatic duct came back negative for malignancy. Only one specimen taken at ampulla in April 2023 via ercp came back from Mayo as ambillary cancer. She had several pet scans, one biopsy done on liver, and several CT scans, all came back without positive result for cancer. We don't understand why her oncologist said her cancer is at stage 4 and no treatment. The only specimen confirmed by Mayo as cancer is not large enough for her2 testing. What should we do ?
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@qq1, that is all very perplexing and confusing. It certainly seems like good news that the 2024 results indicate that there is no evidence of disease (NED). This is not completely unheard of that cancer goes into remission. However, I can understand your unease at believing that. Was something missed in 2024? Was there a misinterpretation in 2023?
Am I understanding correctly, that the diagnoses stands that she is living with stage 4 cancer, currently in remision and therefore no active treatment is necessary at the moment? Thus she is on active surveillance and will continue to be monitored every 3, 6 or 12 months?