Hello @mtksnider
I was looking through some discussions on MDS and found your posting. I too have MDS Del 5q or MDS (-5Q). I was diagnosed July 23. I was on Watch & Wait initially. Six months in RBC and Hemoglobin were dropping and I was approaching transfusion. I was started on Revlamid which is apparently the best drug for del 5q. I have finished 2 rounds. Second round was not as harsh as the 1st round. Find out soon whether the 3rd round will be at a reduced dose. Good news is that my RBC are in the normal range. I am told some of us live 5 and 10 years this way. It all just depends on those Myeloblasts. Your story sounds very much like mine.