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Gross hematuria (blood in urine): Can't find cause

Blood Cancers & Disorders | Last Active: Jun 11 1:45pm | Replies (21)
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@carolak

Thank you for that suggestion. Do you know how long she had the hematuria? Or any other symptoms or tests she had prior to this discovery. ??

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Replies to "Thank you for that suggestion. Do you know how long she had the hematuria? Or any..."
tobytink | @tobytink | May 28 12:43pm

Hi Carolak. I’m the person with cold agglutinin disease that sonieaml is referring to. I was diagnosed in 2015. Mine is secondary to lymphoma. Happy to snswer any questions you have about it. It’s extremely rare and most doctors have never treated or seen it before.

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