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Gabapentin dosage for trigeminal neuralgia?

Posted by pointeofview @pointeofview, Sep 14, 2021

I am currently on 1800 mg/day of gabapentin, but am still having a fair amount of pain. On a scale of 1 to 10, the background level is about a 2 with occasional flares to a level of 5 or 6.
Does anyone have luck with gabapentin, and if so, what dosages?

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jimliberty | @jimliberty | May 7 9:34am

Hi everyone. I have MS and Trigemenal Neuralgia and have taken Gabapentin for both. Now I’m on a relatively lose dose of 300 and both my GP and Neurologist have told me to maintain this dosage even though my Trigemenal pain is non existent - i. e., 0, as I write now. I’ve accepted as I don’t feel adversely from this dosage. (Had gamma knife surgery 6 months ago and no pain sense then. Frightfully had MVD surgery 5 years prior that worked for many years until it didn’t.) For now, I hope Gabapentin keeps the pain at bay!

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1 reply
Wanda | @wandaspearen | May 7 2:55pm
In reply to @larry68 "I am supposed to 300 3x a day but i only do 1.If i don't do..." + (show)
@larry68

I am supposed to 300 3x a day but i only do 1.If i don't do the one my neuropathy in right foot will swell up and hurt all day

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I take gabapentin for my Trigeminal Neuralgia...

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fellow69 | @fellow69 | May 23 3:21pm

Glad to have found this community. One can feel very isolated with TN because many people have never even heard of it. - In my case, 1800 a day also feels helpful but not quite enough. I am talking to my neurologist tomorrow who wants me to switch to Trileptal. Only the risk for Stephen Johnson Syndrome really scares me, so I'm reluctant.

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wander3314 | @wander3314 | May 24 8:17am

I have had TN 1 V1 twice. Once six years ago for seven months and then recently for two months. I can't take gabapentin or most of the anti seizure medications because of side affects. I have fear of falling. It might be ok if I was bedridden. I noticed that the excruciating shocks were caused by something I did such as touching my face, showering, shaving, etc, if I wasn't careful. I stopped TN by very carefully avoiding triggers for a period of eight days. This was by no means easy but the TN went away. I think it gave time for the nerve to heal. It's worth a try as this orphan decease caused the most pain I have ever had.

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fellow69 | @fellow69 | May 26 4:09pm
In reply to @jimliberty "Hi everyone. I have MS and Trigemenal Neuralgia and have taken Gabapentin for both. Now I’m..." + (show)
@jimliberty

Hi everyone. I have MS and Trigemenal Neuralgia and have taken Gabapentin for both. Now I’m on a relatively lose dose of 300 and both my GP and Neurologist have told me to maintain this dosage even though my Trigemenal pain is non existent - i. e., 0, as I write now. I’ve accepted as I don’t feel adversely from this dosage. (Had gamma knife surgery 6 months ago and no pain sense then. Frightfully had MVD surgery 5 years prior that worked for many years until it didn’t.) For now, I hope Gabapentin keeps the pain at bay!

Jump to this post

I hope so for you too. may I ask, what is MVD surgery? Do you mean vascular decompression?

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