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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@devonsdad2008

I was diagnosed with Sjogren's but I also suffer from depression and anxiety/panic attacks. I suffered from depression and anxiety most of my life (47 now) and I have never experienced Fatigue like this, EVER!!! I was diagnosed with Sjogren's in 2016 and that is when the fatigue hit. So I would say Sjogren's has something to do with it one way or another. Of course the depression and anxiety are at it's highest level, so I would say Sjogren's play's apart in that also. Just my opinion, having experienced chronic depression and anxiety and not having to deal with fatigue like this. Maybe it is different for everyone. I know it Sjogren's affect people differently.

I don't have a support system and like some people have posted, people really don't understand! fatigue has stole my life. I lost everything!! What I would like to know from others, is this. Does fatigue get so bad it feels like your body is going to shut down and you will die?? I don't feel that way all the time, but it gets pretty severe way to often. It scares me really. I don't really take anything at the moment because the medication they gave me did not sit well with me. Increased insomnia like never before. Couldn't sleep a wink for 4 days and thought I was going to go insane.. literally!! I did drop the dose but no change. My brain just wouldn't shut down. I did do some research on fatigue this whole time and I recently came across modafinil and I am so curious to try this. I can't handle this life with fatigue and I am desperate, as we all are!! Life sure is unfair!!

Anyhow I feel for anyone going through any illness and specifically Sjogren's because I can relate so well. I do hope we find our lives back and wish you all well...

Bill

Medication was plaquenil.

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Replies to "I was diagnosed with Sjogren's but I also suffer from depression and anxiety/panic attacks. I suffered..."

Jill (@jmmb), thank you for sharing your story. I'm hoping when you meet with the surgeon in Texas he will be able to shed some light on the problem and get some answers and a treatment for you. If possible, it would be great if you can give us an update after you meet with him again.

Keep bugging them and don't take no for answer.
John

Thank you John, I will. Sometimes just don't know what to focus on first, CFS, MALS....ugh, but try to stay positive. People like you help!Thank you again.