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What was your experience with a pain pump?
Chronic Pain | Last Active: Jun 3 6:17am | Replies (76)Comment receiving replies
Ive had a pain pump for 5 years. The drugs in my pump are Fentynal and hydromorphine plus 2 other nonaddictive drugs. My problem is pain in my right buttock so i cannot sit. Only in the last 8 months has my pain moved into my groin area. I am now bedridden in constant pain. My pump doctor will not increase my meds because he is afraid i will die and he will go to jail. My pain is an 8 on a good day. Life has lost its meaning.
Replies to "Ive had a pain pump for 5 years. The drugs in my pump are Fentynal and..."
My family member had a pump for 10 years…kept pain at a 6 most days…then developed a granuloma that attached to his spinal cord. The pain was unreal and now we have to decrease pump. Be aware of any changes in bowel or urinary functions..increased pain in stomach/ abdominal areas or other areas….weak, heavy legs. Granuloma from these pumps are rare but can happen especially at higher levels. The one thing that helped my family member and got him off his oral pain meds was cannabis. It is a game changer when it comes to pain relief. I hope you can find the relief you’re looking for.
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This is a very sad situation. I imagine that you have had your pump output adjusted upward a number of times. Did you ever receive any pain relief from your pump? I am in a similar situation. I had my pain pump implanted just over a year ago. It has never given me any pain relief. Even after being adjusted upwards more times than I can remember. I have buttock pain from a fall eight years ago. No treatment, including spinal cord stimulator and pain pump, have reduced that pain or the feeling of sitting on hockey pucks. No one can explain it.
Please don't give up. Have you had an MRI? That should provide some insight as to what is causing your pain.