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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)
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@karukgirl

Hello there @katiekins,
With the septal myectomy, the O in HOCM is gone...the obstruction...but we still have HCM. I also had severe mitral regurgitation and aortic valve stenosis. That's what my cardiologist told me.
When the surgery was over...these were not my diagnoses at all. It was all due to HOCM.
My septal thickness was not so awful either...but when Dr. Dearani came to talk to me after surgery, he said I had severe HOCM. It's such a weird condition. Some days are great, some days are so difficult. Sometimes your echo looks pretty good, sometimes Valsalva is not bad. I
was prepared to have valve surgery too...but it was fine.
Thank goodness you stopped taking a drug you didn't need!
When you mentioned minimally invasive mitral surgery, do you mean TAVR?

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Replies to "Hello there @katiekins, With the septal myectomy, the O in HOCM is gone...the obstruction...but we still..."
katiekins | @katiekins | May 26 5:54pm

Thank you so much for replying. Which surgery did you have? I actually meant that my gradient is always very high, around 111 ish therefore surgeon said last week that it is dangerously high and he would do minimally invasive surgery repairing my mitral valve or replacing it as that is my real problem. I was so surprised I didn’t take it all in. So what actually is a definition of HCM? I find the whole thing so confusing. My E F is totally normal but my heart is a funny shape apparently at the top with a slight bend which makes it hard for the blood to get through. That’s how I understood it. As surgery is imminent that a I get a second opinion too. What is your thickening if I may ask? Keep well.,

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