My NRA was 1.5. I do not have any other auto immune diseases. We have some pretty great doctors here in Wisconsin, but there’s really nothing they can do for it. I am on Humira which is a shot every two weeks I had been on prednisone and methotrexate for quite some time. The methotrexate stopped working. The Humira does seem to keep me from getting worse I have been on it for a year, the other alternative if the Humira stops working would be to get a cochlear implant.

it sounds terrifying, but I’ve met a few people that have them and there are some people on Mayo Connent that have them a couple of the mentors and volunteers actually.

I feel your pain. I know it’s a horrible diagnosis and it’s bizarre and strange and nothing you could ever have imagined.

You can get through this. Ask your doctor about some of the other medication‘s and I’m sure some other people will respond to my post with some other ideas for you.
My thoughts and prayers are with you.