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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)
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@katiekins

Does that mean that once a septal myectomy has been performed one no longer has HOCM? I have just been told after about 15 yrs that HOCM isn’t really my problem as thickening is 1.6mm too small to operate on but my mitral valve is the problem as valsalva is over 100 upon activity. Waiting for minimally invasive mitral repair or replacement. So all this time I feel I have been mislead. I am not that bad a case and function normally but mornings are the worst for lack of energy and also exhaustion after eating,
Now I know why Camzyos made me feel awful it was the wrong drug for me! Happy though that it’s a miracle worker for some people. Keep well all.,

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Replies to "Does that mean that once a septal myectomy has been performed one no longer has HOCM?..."
Debra, Volunteer Mentor | @karukgirl | May 26 9:24am

Hello there @katiekins,
With the septal myectomy, the O in HOCM is gone...the obstruction...but we still have HCM. I also had severe mitral regurgitation and aortic valve stenosis. That's what my cardiologist told me.
When the surgery was over...these were not my diagnoses at all. It was all due to HOCM.
My septal thickness was not so awful either...but when Dr. Dearani came to talk to me after surgery, he said I had severe HOCM. It's such a weird condition. Some days are great, some days are so difficult. Sometimes your echo looks pretty good, sometimes Valsalva is not bad. I
was prepared to have valve surgery too...but it was fine.
Thank goodness you stopped taking a drug you didn't need!
When you mentioned minimally invasive mitral surgery, do you mean TAVR?

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