← Return to After her Stroke my mom does not want to eat pushes her food way.

Discussion
Comment receiving replies
@yvette08

I have a mixed basket of issues going on. So, my father-in-law had brain surgery at Keck hospital in Los Angeles on 03/29/24, during the surgery he had a stroke. His primary care unfortunately is with Kaiser. He's been home for approximately 2 weeks and is a diabetic on a puree diet due to swallowing issues. He went from being a vibrant 74 year old who ran everyday, rode his bicycle for 20+ miles and more....to being an adult with a bratty childlike behavior. He is currently in a diaper in a hospital bed at home. My husband and mother-in-law have to do everything from cleaning him up to checking his blood sugar, feeding him 0-2 tsps of food, and has to beg him to sip a little water....after a few sips, he is done. They also have to suction him, and brush his teeth. Sometimes he even fights them on taking his meds. He isn't talking, just a little whisper here and there. When they pack him up to take him to appointments, it's like packing an infant or toddler bag. His wheelchair is heavy and although he's never been overweight, he's heavy because he has no balance, but his right side has feeling but he cannot move the parts. The first 2 weeks my husband had to stay with his parents to get a routine in place to end the night. He recently has been able to come home because his dad has been sleeping through the night. It's so disheartening that he has not had any PT, OT or Speech since leaving rehab. He was at rehab for about 4 weeks. My husband has been buying gadgets to assist his dad with sometime of therapy. We don't know what we are doing. His mom is willing to pay out of pocket for whatever but everything as far as referrals are in limbo. There should not be any dead time!!! We treat the incarcerated better than retired and working law abiding citizens. I know, I worked in the system for years. (Venting) We are not the United States of America, we are just states in America. Some states do more and care more and in some states like Califonia it's the polar opposite. I don't know, we just need help....(tears flowing)!

Jump to this post


Replies to "I have a mixed basket of issues going on. So, my father-in-law had brain surgery at..."

@yvette08, I am so sorry to hear that your father-in-law has not had additional access to rehab therapy beyond the initial 4 weeks. It sounds like your father-in-law is equally frustrated being unable to move like he would like to and to having everything done for him. This may explain some of his behvior. It is a such a challenge and heart-wrenching for your mother-in-law and husband. They feel like they are flying blind with little knowledge or support. So hard for everyone.

I bringing @scottrl @pmorgigno @san72 @strokesurvivordynamo @pek59 @neverquit72450 and others into this discussion to share their experiences with rehab and access to services.

Yvette, I'm wondering if your brother--in-law has access to a social worker. They can be helpful in coordinating services and may have suggestions regarding further rehab programs as well as home care support for your mother-in-law.