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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Jun 25 3:06pm | Replies (217)

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@becsbuddy

@needanswers7 So many others feel the same as you!
https://rarediseases.info.nih.gov/
https://rarediseases.org/
These 2 organizations are dedicated to autoimmune diseases and try to keep a list of doctors who specialize in rare diseases. Give them a call on Tuesday and see if they can help. I also have an informative article on tinnitus.
https://www.uchealth.org/today/how-long-does-tinnitus-last-do-hearing-aids-help/?
Please stay in touch and let me know what you learn!

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Replies to "@needanswers7 So many others feel the same as you! https://rarediseases.info.nih.gov/ https://rarediseases.org/ These 2 organizations are dedicated..."

needanswers7 | @needanswers7 | May 26 10:23am

Thank you Becky. Neither site has any information regarding Autoimmune Inner Ear Disease. Any other suggestions? I need to find a doctor to help me before it is too late for my hearing. I live in NC and will travel to get help.

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