My NRA was 1.5. I do not have any other auto immune diseases. We have some pretty great doctors here in Wisconsin, but there’s really nothing they can do for it. I am on Humira which is a shot every two weeks I had been on prednisone and methotrexate for quite some time. The methotrexate stopped working. The Humira does seem to keep me from getting worse I have been on it for a year, the other alternative if the Humira stops working would be to get a cochlear implant.

it sounds terrifying, but I’ve met a few people that have them and there are some people on Mayo Connent that have them a couple of the mentors and volunteers actually.

I feel your pain. I know it’s a horrible diagnosis and it’s bizarre and strange and nothing you could ever have imagined.

You can get through this. Ask your doctor about some of the other medication‘s and I’m sure some other people will respond to my post with some other ideas for you.
My thoughts and prayers are with you.

No. All tests normal. Say AIED but can’t test for it or prove it. Say because hearing improved temporarily on prednisone then must be inflammation and autoimmune disease. No options for help other than cochlear implants when finally go deaf. I am completely healthy otherwise. Checked head to toe. No depression, low stress. My hearing is my major stressor. Have adjusted diet, tried autoimmune diet and inflammation diet with no significant affect.