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Why are there no discussions about cancer of the blood?

Blood Cancers & Disorders | Last Active: May 27 12:34pm | Replies (17)
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@reedabcdv

Lori,
You offer such encouragement to me and others. I have AML that is not curable and can not have a Bone Marrow Transplant. My Acute Myloid Leukemia is a P53 strain and Mayo did not expect ME to have between 2 and 5 weeks in January 2024. Our precious Lord has seen it fit for me to still be here and I am so thankful. Today is May 25, 2024 and I have had 3 rounds of Chemo that were not fun at alll…who can say they love Chemo only it has kept me alive along with support, love and prayers of my humans! May each day be a choice to live it to the fullest.

Thanks for being our Mentor.

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Replies to "Lori, You offer such encouragement to me and others. I have AML that is not curable..."
Lori, Volunteer Mentor | @loribmt | May 25 6:16pm

Hi @reedabcdv. Oh golly, I’d say Welcome to the elite club of AML members but it’s a dubious club to be sure…
I hope I can give you some more encouragement. While a bone marrow transplant is the only potential cure for AML at this time, there are many newer drugs on the market that can really help slow the progression or even have patients reach a good point of remission. Often this is done in conjunction with rounds of chemo such as you had.

You already beat the odds back in January! Sounds like my initial diagnosis. I was less than 50/50 and it wasn’t pretty. Just shows we don’t have to be statistics, right? One of the great memes my chemo team at the hospital put on my wall was this: The devil whispered in my ear, “You’re not strong enough to weather the storm. I whispered right back and said, I AM the storm!” I still think of that to this day and it’s 5 years later. So, Be the Storm!!
Chemo is not easy but you’ve weathered it this far! Are you on any maintenance meds after your initial rounds of chemo? Are there more chemo rounds in the offing?

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