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@whidbey

Camzyos changed my life. I am very sensitive to drugs as well. I was nervous to try it and my cardiologist gave me great information to help me feel confident in starting Camzyos. I have been on it for 9 months now and had a few difficult moments when I didn't feel well. I am currently on 15 mg once a day and my Valsalva went from 86 to 19. (lower than 30 is normal) I feel better and am able to walk regularly, read out loud to students without losing my breath and generally function at a higher level. (i used to have to park very close to the entrance of a building, couldn't use the stairs, and absolutely could not walk uphill) I take Metoprolol 75 mg twice a day. I travel a fair amount and my heart feels way better now as i fly. I hope you find the information you need to try Camzyos. It really is a hassle to have an ECHO so often as they track your results, but I have found the effort quite worth my results. Since we have so many similarities, I want to add that I am 61 years old, work full time , do not drink alcohol or take any other drugs except my heart meds. I hope my experience helps you. I find the MAYO clinic blog very helpful on this journey.

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Replies to "Camzyos changed my life. I am very sensitive to drugs as well. I was nervous to..."

Thank you so much for your reply. It's really helpful to hear your experience as we do have many similarities. It's amazing how much better you are. When you started taking it did they reduce your metoprolol? Did you fly at all in the first few months on Camzyos? It sounds like yours was worse than mine mine's about 50 with Valsava. I'm worried it will go down too much and my heart will stop! I'm 76 yrs old and am an author and travel to teach. I teach Buddhism and have many students around the world. I am currently scheduled to tour in UIS and Europe this year. If I start Camzyos I have to cancel my travel and teaching schedule and my students would be really disappointed. So I'm weighing the need for the medication with commitments I have made and can't figure out if I could wait til I finish my commitments (Dec) or if I should cancel. I find long flights prticularly hard and use an oxygenator. I can't drink alcohol since I started Metoprolol I didn't feel good. I can walk u stairs and hills and ride my bike.