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Hypertrophic Cardiomyopathy (HCM) | Last Active: 17 hours ago | Replies (895)Comment receiving replies
Replies to "https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ Hi @joanallione, I see you are new around here...welcome! Have you poked around in the..."
Does that mean that once a septal myectomy has been performed one no longer has HOCM? I have just been told after about 15 yrs that HOCM isn’t really my problem as thickening is 1.6mm too small to operate on but my mitral valve is the problem as valsalva is over 100 upon activity. Waiting for minimally invasive mitral repair or replacement. So all this time I feel I have been mislead. I am not that bad a case and function normally but mornings are the worst for lack of energy and also exhaustion after eating,
Now I know why Camzyos made me feel awful it was the wrong drug for me! Happy though that it’s a miracle worker for some people. Keep well all.,