Dry Mouth. Particularly at night. Solutions?
I was diagnosed with Squamous of the tongue and lymph nodes. Following surgery, radiation and chemo/cysplatin I've had chronic dry mouth. A friend of my husband's who had similar surgery recommended Xylimelts stick on mints. I bought mine off Amazon and the box of 40 was less that 20 bucks. They really work. I sleep through the night. And my daytime dryness is much better also. They work for me.
Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.
I had chemo radiation for left tonsil cancer back in 2008 and tried electrical stimulation acupuncture in 2015 where I was tested to get a baseline and retested after 8-10 appts. and had great results. Never needed to go back.
How long have you been using them? There are some concerning reviews online about this product from people who have used it for extended periods.
I've been using them for about 2 weeks. It seems to me that when my lymphedema flares up I have a very dry mouth at night. When its not as inflamed my mouth has a little more saliva. They do seem to help no matter how the lymphedema is. I will look to see more about long term use. Thanks
It might help me so I'm going to check into it as well. Thanks for talking about it as this was not on my horizon.
@sandy8043, you might also find some helpful tips in this related discussion:
- Saliva and dry mouth: Head and neck cancer and treatments
https://connect.mayoclinic.org/discussion/saliva-and-dry-mouth/
Biotene line of products for dry mouth. Spray is effective for me, especially epiglottis/swallowing.
Xylimelts also daytime, not just cpap night time. Outlasts short life lozenges! Can't chew gum!!
Xylitol powder as substitute for sugar upset my GI tract. Xylimelts and Biotene don't. Each patient/person is unique to what helps or not, or irritates. One person's negative review is not the endall.
Biotene spray is effective long time after 2 or 3 sprays!
I agree
Biotene as often as needed.
You don’t want to get thrush.
Early on after oral radiation, I found that most oral hygiene products caused mouth burning, so I had to do a trial and error approach. I still don't tolerate Biotene mouth rinse full strength but can use a squirt of it in a cup of water. I use it at night for rinsing and spitting out when I wake up. The dry mouth itself can wake me from sleep because it actually gets uncomfortable. The Biotene gel I get is berry flavored and more tolerable, but I don't care for the flavor as well. Xyligel from Amazon works the best for me for dry mouth relief, and it is sugar free having a light lemon flavor. I use this day or night when needed. It has a little coconut oil in it, so it is soothing to oral tissues. Walmart carries CloSYS,ultrasensitive mouth rinse that is unflavored but doesn't offer the lubrication needed to replace saliva. I tried Saleava offered for dry mouth , but it burned my mouth. I use a children's berry flavored toothpaste, because I don't tolerate mint. Lastly, I have just started a prescription, called Cevimeline, that is used to stimulate the salivary glands. It is taken 3 times per day. Interestingly, it does seem to increase salivation. I notice that have have moisture collecting at the corners of my mouth, annoying, but tolerable. It traditionally has been used for other conditions that cause dry mouth.
I've been having trouble with mint, too! I had radiation and chemo for tongue cancer in Jan 2024. Since the a variety of foods bother my tongue. My saliva production is pretty good. But anything mint burns. Mayonnaise is like fire! Sugar, too. Any beer or wine burns, too. I read about the acid vs alkaline balance and started using baking soda. While recovering from cancer I used a lot of baking soda rinse. I stopped that once I was healed. I've now gone back to that and its helped a bit with the stinging. I also take a 1/4 tsp in water and swallow it twice a day. It has stopped the general mouth/tongue burning.