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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@nanke99

I am new and just posted some of my story in someone else's post. My fatigue and weakness has really destroyed the life that I had, and has
created much depression. I am barely active, my mind is constantly in a fog, and can't foresee ever being able to pursue any of my passions or hobbies. I often cannot spend time with friends. I can't imagine it ever getting better but only worse and I am 50 years old. I fee like my health is fading and going downhill rapidly. So there ya go! That's how I feel... Kinda hopeless.

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Replies to "I am new and just posted some of my story in someone else's post. My fatigue..."

There is a book about a female explorer, Isabella Duncan, (I think). She was sick every time she was in England.<br>But if she went to Mongolia (first white female to travel there alone) or the Rockies (first woman to scale Longs Peak)<br>Or if she was in Hawaii (she loved it) – she was well, hail, and hardy.<br>If she was with her primary family, she would lapse into pain and indolence.<br>Shake it up! Seek a Shaman…find another path.<br>I’m one to talk.. I am bonded with golden chains to the tech industry, which is slowly killing me, for another few years.<br>But in my dreams, I dream another life!<br>Sometimes they are so vivid, I wake up confused as to where I need to go and what I need to do.<br>R

Please know it is not hopeless! It is hard, but try moving for 10-20 minutes a day, even just walking at the mall or in your neighorhood. Daily small amounts of activity can actually be energizing. I have to force myself sometimes but it really is worth it. Is there a gentle yoga or tai chi class you can join nearby? Even if you miss classes sometimes just having that on your schedule can be encouraging and you may meet people with similar concerns who have some understanding of what you're going through. If your doctor is not addressing this or taking seriously maybe it's time to find one who will. Give yourself permission to rest when you need it. That helped me a lot because I was stressing myself out thinking I was letting people down and I just had to say hey, I need this rest. I started keeping a gratitude journal that I write at least 3 things I'm grateful for every day and then when I'm really down I can look at it and things seem better. We are all so individual and have to just try things to see what works for each of us. So pick something to try and keep a log of whether it helps or not. That way you can take back control of some part of your life and see that you are trying to move forward. My mantra is "This is only temporary". Where you are now is not where you will always be. Sending good thoughts and prayers your way!

Welcome @danavetmom2. What a great first post. Thank you.
I like the idea of your gratitude journal and how it helps you even when you're down and can't write. What physical activity helps you the most?

@nankee99 Sounds like a good time to get a full workup at Mayo Clinic. 😉
http://mayocl.in/1mtmR63

Hugs
Dawn

Walking my dogs and yoga are great. Tai chi in a group also nice.<br><br>

I have been there I have good and bad days! Dont feel hopeless seen a suggestion for a journal great idea!! Maybe a change in diet? You have to find out what is good for you! I find music motivates me! Hope is something we all have!!! I drag myself to the beach the sounds of the waves crashing make me forget about how ill I really am,need to find your happy place. Sometimes I dont move my car for days staying in makes me depressed and drained! A change of scenery does wonders!!! Makes me mentally and physically charged !Spending a day with my friend and her grandchildren makes me happy, Happiness is their You have to find it!!

I have seen countless idiot Drs ! Good doctors are no doubt hard to find! I have been trying to get my pancreatic specialist on the phone for months no reply but got in New York Presbyterian portal the PA went over my last test and did not show my doctor?-had a stone in pancreas for years I want to know the damage done, Had about 7 doc tell me I was going to die of pancreatic cancer and wanted to know why ? Not one could explain Because I had a stone pushed in from an EUS I complained of pancreatic pain for years had sono grams Mri Mrcp with contrast,cat scans ect..Drs thought Pain was in my head except 1 Doc at Sloan KETTERING in NYC Dr Hyman Fong he relocated to Hope California do I have to fly there? Ha ha ha ! I will call again this week I live eastern Long Island takes 2 hrs to get to NYC by train would not drive no parking!!!

Animals are a blessing. I have rescue cats and they do so much for me. I also do water aerobics. Lots of fun. They don't care when I'm being useless. Only mandate is that I try not to drown myself! Laughter is a great therapy!

Hi sorry for your pain.I'm Lioness ,have fibromyalgia ,30yrs,Triple bypass,cholesterol problem and L2fracture .My 2cents see a good rheumatologist, I adhere to natural meds Fibro Malic for fibromyalgia It has the magnesium in we need Use Epsom salts in tub bath.Tens unit for tight muscles,Ice at times ,heat at times Beside meditation I use Tapping ,you can learn more at Tapping.com don't overdo,when I do I can't do anything the next day.I couldn't take Lyrica o r Cymbalta so use Tramodol@Aleve together Good luck

Sounds like toxic problem more then fibro ,but agent Orange during Vietnam war wasn't funded either for a long time Fibro is diagnosed by trigger points 18 to be exact and symptoms of the person.