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JohnWBurns (@johnwburns)

Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Nov 16, 2020 | Replies (474)

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@meemer

About 7 years ago I was diagnosed with Celiac disease and 2 years ago I was told I have Sjogren’s. Apparently it is not unusual for the 2 to go together. I have had these 2 problems for many years but the doctors just didn’t figure it out. Long before Celiac was diagnosed, I had horrible bloating, cramps and tummy pain so bad that at times I couldn’t stand up straight. Soon after I went gluten free that problem went away. John, have you tried that for your belly bloat? I also have chronic back pain which is another unrelated problem but not an insignificant one, and with dry mouth and eyes from the Sjogren’s and then add in the back pain I would say I have “fatigue”. There are days when I don’t feel like doing anything but sitting. I am a dedicated quilter and when I get together with my quilting friends or when I am working on a project at home I feel so much better. My sewing room is my “therapy room”. I think having a good hobby you enjoy and get together with friends is the best treatment anyone can have. Just my 2 cents.

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Replies to "About 7 years ago I was diagnosed with Celiac disease and 2 years ago I was..."

@meemer you seem to have found the right answer for yourself! Being alone or not doing something gives one lots of time to obsess or worry about what bothers them. I know I’m better if I just go outside and chat with people. And the idea of quilting is great, I’m also a quilter but haven’t been able to do anything. 2 weeks ago, I had a dose of rituxan and now I want to sew! It makes me think of things other than being tired. I’ve even thought of trying to put my thoughts of the past year into an art quilt, but nothing has come up yet.
I’m sure glad you have a hobby and friends! Sure makes a difference!