Connect
← Return to Protocol after Tymlos
Discussion
Comment receiving replies
I just completed two years of Tymlos. I had only minor side effects including rapid heart rate for about 30 minutes after injection, more pouf in my tummy area, and lethargy at times. The one thing I wish I had done better was to be more consistent with calcium and vitamin D. I went from osteoporosis to osteopenia, although I don't have any BMD measurements from the same machine due to moving around. My doctor just put me on Reclast. I got an infusion within a week of stopping Tymlos. In two years I will get another hip/spine BMD test. Then, if all has gone as expected, I'll do three more Reclast infusions spaced 18 months apart. I felt pretty bad the day after the infusion but ok after that. Build as much bone as you can while on Tymlos. Vitamins and weight-bearing exercise are important I think.
Replies to "I just completed two years of Tymlos. I had only minor side effects including rapid heart..."
Yes, my doctor told me that the weight bearing exercises I do while on Tymlos will have a much stronger effect on building bone than when I stop taking Tymlos. He said at that point the effect will be minimal.
Connect
I will be off my 2-year protocol with Tymlos in July so need to consider my next plan of action. I’m a bit concerned with Reclast because it’s in ur system for a year and if there are side effects I can’t just stop from day to day. How are you feeling? What did ur numbers look like before starting Tymlos and how much improvement did u have. As of Nov, I had an 11% gain in my spine, will have another in July. Thanks for the info.