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← Return to Covid Legs and Toes
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I clicked on "helpful" bec it helps us all know that too few docs know anything about much of what we are experiencing even if there is a name for it.
I was told lymphedema for my swollen legs after a year of suffering w/ them and with other feet and leg symptoms. The wraps made my lymphedema worse which tells me perhaps it's not that. (2 hour ultrasound lead them to think it was tho' other things made them unsure.) A horrible rash on right thigh and ankle; ankle cleared up, thigh is not. AND it hurts and is swollen. Bottom of heels of feet are blistering and peeling and since I'm not walking far bec of pain, it isn't from that! Podiatrist said use a steroid cream; PCP said not to use it often. AAARGH. So the pain and burning continue.
How are we managing? What fortitude we all have.
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Interestingly, my mom has been experiencing something like what you're describing since COVID as well, she gets a badly swollen calf and ankle with angry red blistering rash. She is prescribed prednisone cream which seems to work for her, but it doesn't keep in from flaring up again some other time, perhaps when her immune system is run down. Doctor says it's from COVID and they see it all the time now. It's different from the EM I experience in that it is an obvious rash, but it's similar in that there is a lot of pain and heat. So strange! There needs to be more support for all these weird symptoms of Long Covid.
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Thank you so much for your detailed response and history. Sending our prayers for you. Hope you find respite soon. Agree, Covid has changed a lot of lives. We have gotten tests done from Bruce Patterson's IncellDX . They have two tests. The tests were not conclusive and they don't really tie the results to your symptoms. They are expensive tests. They prescribed LDN, Maraviroc and a statin just in case. They did say it doesn't seem to be microclots.
Although,now we are planning to actually get Dr. JORDAN Vaughns blood work from Medhelp Clinic in Alabama to check specifically for microclots.
If it is the nervous system, then the only way forward is to retrain the system.