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Myelodysplastic Syndrome and Sjogren's

Blood Cancers & Disorders | Last Active: May 24 4:18am | Replies (16)
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@sjjs

Thanks! Right now, we are still figuring all this out. My numbers are low, too, especially WBC platelets and Hemoglobin. I am receiving monthly EPO injections to raise my hemoglobin. I see a hematologist but will see an MDS specialist on June 4th. I live in LA, and there is an MDS meeting in San Diego (about a 2.5-hour drive from LA) on June 29th. In my inbox this morning, I received an invitation to an MDS webinar presentation on June 8th. Where do you live?

Presently, one of my biggest concerns is my elevated copper level. Have you measured yours?
Best!

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Replies to "Thanks! Right now, we are still figuring all this out. My numbers are low, too, especially..."
vicscats | @vicscats | May 23 8:37pm

I have normal to elevated wbcs!
It’s called macrobiotic anemia. Maybe from an unknown blood source
What does elevated copper mean?
I have diabetes/ Graves’ disease/spinal arthritis/diverticulitis it’s all too tiring
I’m just hoping to figure out bleeding
Going on 2 years
So tired. Are you tired all the time?!

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