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Mucous Membrane Pemphigoid

Autoimmune Diseases | Last Active: Jul 20 3:27pm | Replies (28)
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@terrydclaar

Hello John, I interacted with you on the Mayo PN group page. My wife has just been diagnosed with Mucous Membrane Pemphigoid. So I am very interested in the disease and any treatments you have found for controlling/managing this situation. Thanks, Terry Claar, Newark, Delaware.

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Replies to "Hello John, I interacted with you on the Mayo PN group page. My wife has just..."
John, Volunteer Mentor | @johnbishop | Nov 20, 2020

Hi Terry @terrydclaar, I'm sorry to hear your wife has been diagnosed with Mucous Membrane Pemphigoid. I don't have any personal experience with the condition but can share a few sites that may be helpful to learn more about it.

Here is a previous post above that has links that may be helpful - https://connect.mayoclinic.org/discussion/mucous-membrane-pemphigoid-2e577d/?pg=1#comment-263466

Here is a link that was on the NORD site that has some info that could be newer - International Pemphigus & Pemphigoid Foundation: https://www.pemphigus.org/

Hopefully other members can share their experience with you.

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