Major Changes as Spouses Age

Posted by joyces @joyces, Apr 14, 2020

My second husband and I met while both of us worked in the sport fishing industry, he in a tackle shop only a couple years into the industry, and me working for a publisher of sport fishing magazines and books, a decade into the industry. Our first "date" was fishing together and watching steelhead attempt to leap over a waterfall. He became the second editor of the fly fishing magazine the publisher and I had started five years earlier. Although my job managing the publication of two magazines, a quarterly, an annual, and six books/year was demanding and meant working an average of 70 hours/week, I was paid well and loved it. Because he was a male, the publisher expected him to be off fishing at least a couple of days every week. We were able to fish at many luxury lodges because we made a great writing/photography team. I'm five years older, so expected that we would be able to age--and fish--together. After a few years, the publisher's children were old enough to be a big part of the business, so we started our own design and marketing business to serve the sport fishing industry. We shared an 18' driftboat we'd helped design...and market, of course! Lots of work, but lots of wonderful times spent together.

Eleven years ago, he ruptured a disc in his lower back, had surgery by a really bad fellow who sought out people with underlying health conditions so that he could claim repeated surgery (at his day surgery center, of course) was necessary. Three back surgeries in one year, the final one a fusion. He had persistent pain, was a brittle diabetic with less than 30% kidney function, but he worked full time for our boat mfg. client while I did all the nuts and bolts of design and marketing for all our clients. We still fished every few days, except in the worst of winter weather. He trailered stacks of boats to nine trade shows every winter, each show being a five-day event generally several hours distant. Eight years ago, he had to go on dialysis, so he couldn't travel to trade shows but continued to sell boats from the factory. Even though he was working full time and going to dialysis three nights a week, we still fished most weekends. I continued to do fish surveys in a wild little stream, a project we had started together in 1993, even though following back surgery he wasn't able to hike long distances over difficult terrain. The project is closing in on 30 years, and I'm still volunteering in the same wild watershed.

When he got the kidney transplant, I visualized great days ahead. At the same time, he had planned to retire, i.e., do absolutely nothing, not even the few chores he had been doing around the house, because he felt he had earned retirement. Hmmm...what about those years where I worked long hours while, because he was male, he was allowed to "work" onstream???? His recovery was ultra-smooth, perfect labs, virtually no fine-tuning necessary for the various meds. When he came home from the hospital, he began his retirement routine: he reclines in his recliner and expects me to fetch whatever he needs. He eats all his meals there, watches TV, reads...except for frequent breaks to lie on the couch. We moved to this acreage on the coast, which I had initially purchased when I was 19, and, as a retired person, he expected me to do the packing, haul everything out to the trailer and van, drive it here, and pack much of it upstairs to our new loft. After six months, he had lost most most of his muscle tone, and he had far worse pain. Since then, I've tried to get him to go to PT many times. He did go to a local person, who gave him a pass from doing anything even slightly difficult; that was relatively worthless and only lasted a few weeks. Later, I insisted that he return to the pain mgmt. clinic to which he'd been referred by the transplant team. They sent him to a PT who expected him to work, but she gave up on his lack of progress after 10 months. Since then, he rarely leaves the house other than for doc appts. I nagged him into joining the local fly fishing club, and he did agree to go on a very easy outing, the first time he'd fished at all in years. However, after 15 minutes of me rowing him around a lake, he announced he needed to lie down. I left him at the car and rowed around the lake for 45 minutes or so, got a great photo of a heron and test casted a new fly rod. it's too difficult for him to sit upright more than a short time, so lots of activities are not open to us. If I suggest dinner out, he insists on ordering takeout, which isn't the same at all. I never expected that marrying someone five years younger would work out this badly! Once a week, I escape by making the 110-mile drive to the Portland area to load 400-600 loaves of bread donated to our local Backpack program. That's an entire day away from watching him steadily lose balance function and strength. If he gets much worse, I'll need to use all the money we've saved to pay for care at the only decent facility in this small town. Meanwhile, I work every day to conquer my problems with lack of balance and hearing due to the reappearance almost a year ago of the Meniere's monster. I'm working hard to get a remission in order to lock him in the closet and nail it shut! No matter how bad I feel, I am not retired but must keep the household running, care for the pets, do all the yardwork that acreage requires. Bah, humbug!

I know I'm not the only woman in this situation. The founder of our local Backpack program has the same problem with her husband, only in his case it's following successful foot surgery, even though he refuses to do PT to regain his ability to walk. They also live on acreage, and we often laugh about our similar situations.

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@sueinmn

Aren't we fortunate? My husband has cared for me through eeveral illnesses and seemingly endless othro surgeries over the last 20 years. It seems like I'm always either recovering or in PT. And I have helped him keep his diabetes under control for 25 years, trying to cook food that is both tasty and healthy for him. I had great role models - my grandparents celebrated 60 years, with my Granddad as caretaker for the last 10 years, and my parents caring for each other for over 50 years...soon we'll celebrate 49 years ourselves.
We are blessed. Sue

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@sueinmn- We are very, very fortunate. I just hope that I have the patience that he has- he is a terrible patient!

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@contentandwell

Oh my goodness, @joyces, I can only imagine what you are going through. I have been through a few similar things but nothing nearly as drastic as you have, and your husband is younger than you to boot!
I wish I had a suggestion of how to make your husband wake up and realize that he needs to shoulder some of the burden of life too. I think women in general are often more able to be independent (sorry guys, I know that’s not true of all men), and expect to be taken care of.
I too tend to be non-adversarial and find it easier to just put up with things rather than have conflict, although I have been a little less that way as I have aged - again, just a little.
I do not like ultimatums but since your husband has chosen to be entirely dependent on you for everything maybe it’s time to take that tack and tell him that he has to pitch in, or you could just hold back from doing everything for him and force him to do for himself. I realize that’s harsh, and before taking those measures you should have a session with a counselor. Even better if you can get him to go to a counselor with you. I think counseling is your best option if you want to preserve your marriage.
JK

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Doesn't sound harsh at all. It is not just teens or addicts who need tough love from time to time.
You may have made it too easy for him to become overly dependent on you. Stop doing the things he can do for himself and find ways to enjoy your life. Can you sell the place on acreage and move somewhere easier to care for to give you less responsibility and more time for fun.

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@joyces

Reply to Scott, Vol. Mentor: My husband is five years younger, now 73. We went through the big life changing event a couple of years before we were married, when he was diagnosed as diabetic...and turned out to be very brittle (blood sugar levels often have little relationship to logical things like food and exercise vs. insulin taken. Our primary doc at the time kept impressing on both of us that we could live normal lives in spite of the disease, and, for years, we did.

He current level of helplessness was brought on when he announced he had retired and therefore would do nothing because he had "earned" it. He's been shown at various times that doing any sort of exercise quickly reduces his lower back pain, but he refuses to admit that's the case. He was able to work full time, fish weekends, even add three evenings a week of dialysis to his routine before his transplant, but the transplant, instead of meaning he was free from dialysis and a very strict diet, meant that he spends all day reclining or lying down with no exercise, which increases the back pain. He's been told by several docs that he needs to move to reduce the pain, but he flat refuses.

At the same time, I've lived with the limitations of Meniere's for nearly 40 years without allowing it to take over my life. At 77 (won't be 78 for over a month) I hike in difficult terrain as a volunteer data collection person for our state fish & game agency. Although I have zero normal balance function, I do vestibular rehab every day to maintain my ability to move about. Some of the instream surveys I do are a challenge to far younger people; we've hung ropes at various extremely steep places to aid us in covering our basic surveys. I might have "wussed out" when I first had serious problems with Meniere's, but my son had set an excellent example when he had a disc in his back deteriorate when he was only 16: although told that he basically couldn't do anything because the problem would spread up and down his spine, he asked for back exercises, does them daily (he's now 56), does some active exercise every day, and keeps his weight in check. He was originally told that he'd wind up in a chair, but he continues to hike, play softball and basketball, care for the acre he lives on. It is possible to decide how well you want to live when you have a chronic problem, whether or not you're going to allow it to run your life. When I was initially diagnosed, the doc told me to "quit your silly job, stay in bed, and take Valium." Fortunately, I didn't do that so am now far more active than my contemporaries--"in spite of" the disease.

Again, the pain levels of my husband's disease are actually lessened when he can be beaten into moving. His problem is far different than something that can't be made better or a disease that is progressively worse regardless of what you can do.

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I wonder if he might be eligible for palliative care. Through them you may receive support too.

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@gravity3

I wonder if he might be eligible for palliative care. Through them you may receive support too.

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He's an extremely brittle diabetic who can't tolerate fast-acting insulin. When pharmas quit making animal NPH (slowest-acting) and later quit importing it, they all started making fast-acting artificial insulin, because about 95% of insulin-dependent diabetics require fast. In the years since, they've brought out many "designer" insulins, but all of them are too fast. A few years ago, the FDA declared animal insulin 'Illegal," claiming it hadn't been adequately tested. Gimme a break: millions of lives had been saved over decades with animal insulin, both NPH (slow) and R (fast). We buy insulin at great trouble and expense from a British pharma that still makes it...but, since it's illegal, no care facility or caregiver can use it. He was in the local hospital for five days last year...without any insulin, his blood sugar ran over 400 (extremely high). It was almost two months before he could reason, knew where he was, etc. Gotta love the US pharmas that refuse to make just one kind of slow-acting artificial (instead of all the trendy "designer" insulins)...and the FDA, looking out for our best interests--not!

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