InterSTIM

Posted by cindybp @cindybp, May 16 10:50am

I have a neurogenic bladder with idiopathic urinary retention. I’ve had two cystoscopies that were negative for problems except my bladder is floppy and enlarged. I’ve been through urodynamics and my bladder has limited functionality. They’ve recommended the MedTronic InterSTIM (I believe that is correct).

I’m reluctant to proceed with this because I want to know what caused this problem. Is it the same reason I have IBS-C? I understand idiopathic means they don’t know why, but I don’t want to focus on the problem if it’s part of a bigger picture. Is it possible I have a neurological disease like Parkinson’s or MS?

I’d sincerely appreciate hearing from others who’ve experienced this?

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

annbelle | @annbelle | May 23 9:43am

self diagnosis is not good in my personal experience

cindybp | @cindybp | May 23 12:45pm

In reply to @annbelle "self diagnosis is not good in my personal experience" + (show)

I agree. I’ve been seeing specialists.

Have you had InterSTIM?

annbelle | @annbelle | May 23 5:44pm

no, i am stage 4 failure, trying to stay here

cindybp | @cindybp | May 24 3:33pm

Does anyone have the Medtronic InterSTIM? Is it working well for you?

hbrajendra | @hbrajendra | May 26 1:35pm

I am also going through the same problem since about almost 6-7 years. I have seen more than 6-7 urologists. I have been through several procedures. Drugs have not helped me a bit. Procedures like Urolift or TURP (I hope I am using
The correct acronym). One Urologist strongly recommended the InterSTIM. It is fairly new procedure. The patient has to tolerate carrying all the time on the back of your body. I thought this would be inconvenient. If anybody has any experience of using this InterSTIM device, I would like to know. Pl. respond