Connect
← Return to Mucous Membrane Pemphigoid
Discussion
Comment receiving replies
Thank you for the information. Mucous Membrane Pemphigoid is a little different than Bullous Pemphigoid. I have it in the mouth and being treated with Clobetasol Gel in mouth trays. I may have to take an oral steroid, which I don't want to do if possible. I was wondering if there were any natural ways to cope with MMP. I recently read about concerns of taking probiotics if you have autoimmunity disorder. I have been taking probiotics for years and now decided to stop and see if that makes a difference.
Replies to "Thank you for the information. Mucous Membrane Pemphigoid is a little different than Bullous Pemphigoid. I..."
I also have MMP in my mouth, nose and eyes. I cannot take any of the top 3 immunosuppressants: azathioprine, mycophenolate , Methotrexate. I have allergies to yellow dye and yellow compound. Mycophenolate raised my BP to 212/98. Are you taking an immunosuppressant? If so, what color is it?
I have MMP in my mouth, left nostril, and eyes. I use a mouth rinse, Taculimus, and it certainly helps. Early on, when I didn't have a diagnosis, I use Dental Pro 7. It is a herbal mixture from the UK. I sometimes put it on my toothbrush and brush my teeth. I sometimes put a few drops in a small cup of water and swish and spit. I also have put a few drops on my finger and rub it over any break out areas in my mouth. I am followed by dermatology for my mouth, ENT for my nose and ophthalmology for my eyes.
Connect
Hello Emma Louise, I hope you are doing well in managing your MMP! My wife has just been diagnosed with Mucous Membrane Pemphigoid. So I am very interested in the disease and any more recent treatments you have found for controlling/managing this situation. Thanks, Terry Claar, Newark, Delaware.