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Myelodysplastic Syndrome and Sjogren's

Blood Cancers & Disorders | Last Active: May 24 4:18am | Replies (16)
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@vicscats

What are your labs like. I have gotten. Rbc and other things like mcv type things that are off several different mc?? All low rbc is mixed up sizes. Just trying to learn

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Replies to "What are your labs like. I have gotten. Rbc and other things like mcv type things..."
SJJS | @sjjs | May 23 11:06am

Thanks! Right now, we are still figuring all this out. My numbers are low, too, especially WBC platelets and Hemoglobin. I am receiving monthly EPO injections to raise my hemoglobin. I see a hematologist but will see an MDS specialist on June 4th. I live in LA, and there is an MDS meeting in San Diego (about a 2.5-hour drive from LA) on June 29th. In my inbox this morning, I received an invitation to an MDS webinar presentation on June 8th. Where do you live?

Presently, one of my biggest concerns is my elevated copper level. Have you measured yours?
Best!

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