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← Return to Covid Legs and Toes
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I have had this exact same condition since having COVID in spring of 2020. I was diagnosed with erythromelalgia and Raynauld's. I also have mild dysautonomia that causes intermittent discoloration of my legs (purple with white spots). I have yet to find something that helps other than relieving the symptoms through lifestyle alterations. It has been super frustrating. I looked up IVIG but would have to pay out of pocket and it's absurdly expensive ($10K a session or something like that). I've tried dozens of supplements to no avail. I've been on Low-Dose Naltrexone for over a year with no changes (yet). I've seen a neurologist, rheumatologist, functional medicine doctor, naturopath, vascular specialist, dermatologist, and several GPs. None of them had heard of erythromelalgia nor knew it was something that could be caused by COVID. The research needs to catch up. Note: I have no other health issues whatsoever. My labs always come back perfect. So frustrating!
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I clicked on "helpful" bec it helps us all know that too few docs know anything about much of what we are experiencing even if there is a name for it.
I was told lymphedema for my swollen legs after a year of suffering w/ them and with other feet and leg symptoms. The wraps made my lymphedema worse which tells me perhaps it's not that. (2 hour ultrasound lead them to think it was tho' other things made them unsure.) A horrible rash on right thigh and ankle; ankle cleared up, thigh is not. AND it hurts and is swollen. Bottom of heels of feet are blistering and peeling and since I'm not walking far bec of pain, it isn't from that! Podiatrist said use a steroid cream; PCP said not to use it often. AAARGH. So the pain and burning continue.
How are we managing? What fortitude we all have.
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May I know which specialist diagnosed you with erythromelalgia and Raynaud's?
My wife has calf pain in both legs since 7 months post Covid. Been to all specialists and also did rounds of Peptide and ozone and IV. Last couple of months she has burning in legs feet and toes. Just started seeing discoloration of toes turning bluish, purplish. Just starting LDN now. She was prescribed Gabapentin for burning which she started taking a week ago.