← Return to Switching Transplant centers for post transplant care

Discussion

Switching Transplant centers for post transplant care

Transplants | Last Active: May 15 3:47pm | Replies (23)

Comment receiving replies
@johnnoregon

My liver transplant was done at Oregon Health and Science University in Portland in Sep 2021. I'm doing quite well post-transplant. I'm moving from here in Oregon to probably Prescott AZ later this year or early next year. My son in Cave Creek (horse vet) is getting married to another vet and they asked for help with daycare for the immediate family they want to start. Having no grandchilden, of course we're going to be near since they asked.
I'm assuming I can transfer my liver care to Mayo?

Jump to this post


Replies to "My liver transplant was done at Oregon Health and Science University in Portland in Sep 2021...."

@johnnoregon there was another discussion similar to yours where a couple of members were wondering the same thing (transferring transplant care from another transplant center to Mayo). I think the general consensus is that it is possible.
Two things come to mind. One is that you are moving to the area and relocating is a valid reason for wanting the change. The other thing is that you might find it helpful to enlist the help of Oregon Health and Science University Transplant Center to send a referral to Mayo Transplant Center in Arizona. They can pave the way by explaining your circumstances and can send your health records. You might find this helpful in getting established with Mayo.
I’d like to share my own story. I had a pancreas transplant (going on 19 years ago) at a Transplant Center other than Mayo. I was satisfied with the pre-transplant evaluation and thrilled with the transplant. Over time I felt that the follow up care was inadequate. At about 11 years post transplant I was in need of a kidney pre- transplant evaluation. I turned to Mayo, MN. I was evaluated, approved and accepted for kidney transplant. My team has been helpful in making recommendations regarding my pancreas post transplant care BUT they are fairly blunt about the fact that this is “not their transplant”. I’m technically on my own with the care of my first transplant. Yet they have collaborated with my local providers (endocrinology and nephrology) regarding my care. I trust them completely and I’m inactively listed with them for kidney transplant. The listing is inactive because I’m not quite bad enough for active listing.

Thanks, Cheryl. I get what you're saying. They didn't perform the surgery and liabilities can be substantial. I'll start with OHSU first, and see where that takes me. I would like to get access to both a GI doctor and a hepatologist at Mayo, which I'm sure won't be a problem. If I read correctly, you aren't in the zone yet for a different kidney, and I hope you can stay free from that for life.

@johnnoregon My husband had his kidney transplant October 2016 at Scripps Green Institute near San Diego [CA]. When he relocated here to Oregon May 2020, his annual review was moved to Legacy Good Samaritan in Portland. It was a simple authorization for release of records, after confirming they would be willing to take over his case. We are forever grateful for his donor, the care he received while working with Scripps. The first year he did actually return to San Diego area for his annual appointment, but then transferred things up here. The 6 hour trip to Portland is much easier than the 18 hour drive to San Diego! Of course, you could use that annual review to re-connect with friends you are leaving behind in Oregon, if you'd like.
Ginger

Good morning.
My transplant was at Mayo Rochester. I live in central Kentucky, and connect with m y transplant dept via the patient portal throughtout the year. My husband and I return to Minnesota annually for my check-up. My local PCP monitor my health and is willing to work with my transplant team. My routine labs are performed locally and results are faxed to Mayo. My immunosuppressant medications are monitored and prescribed by my transplant team.

Here is the link that Cheryl mentioned in a previous comment.
- Switching Transplant centers for post transplant care
https://connect.mayoclinic.org/discussion/switching-transplant-centers/