← Return to Stiff Person Syndrome: Want to connect with others

Discussion

Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
Comment receiving replies
@SusanEllen66

@sheeva888 I’ve been seeing a neurologist for years. The issue with me is that new neurological issues keep popping up and possibly overlapping.
I saw the doctor today. While I was there my body was in a full spasm. I was like, “what is this!” He said you are having spasms. It’s not Parkinson’s because I move too fast.
These spasms are getting worse all the time. I feel like there is an electric current running up my toes to my head.
I was referred to a movement disorder specialist neurologist. So now I wait for the to call for an appointment.

I hope you are doing well. What do you do to feel a bit better?

Jump to this post

Replies to "@sheeva888 I’ve been seeing a neurologist for years. The issue with me is that new neurological..."
sheeva888 | @sheeva888 | May 22 7:30am

That sounds very unpleasant. I am sorry you had to endure that. Spasms are so incredibly painful and scary. It’s a long list of tools in my toolbox, but without a diagnosis you won’t have access to a lot of my tools. In the interim, most SPS patients find heat to help. Heating pads, hot tubs, saunas, hot baths, infrared sauna bags to use in home, etc. Also Tylenol and THC (if you are open to that) if you have not been prescribed Valium yet. Low stress, quiet, and lower lighting help. Sometimes light stretching. Heated massage guns, if tolerable. Massage therapy, light or deep depending on what your body can handle.

Try to keep a journal of symptoms and take videos and pictures as things happen.

I hope this helps and the new doctor can get you a proper diagnosis.

VIEW AND REPLY