Hi everyone,
My situation is slightly different. I was told I have a high-risk kappa disease. I have had two transplants back to back, and, finally, we achieved MGUS like state. It has been almost 1.5 since the last transplant.
Kappa numbers slowly decreased. It seems to fluctuate slightly.
I get tested every month, and the last test just revealed a 9-point increase. The M spike is stable at .5 (it was 2.5), and lambda is normal.
I am on Revlimid, Ninlaro, Darzalex, Dexamethazone ( just lowered to 5 mg a week) combination drugs.
That is my story.