← Return to Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

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@lorid01

I was diagnosed with bile duct cancer that went to the pancreas in 2018. I had Whipple surgery, was clear until three years later when it returned, this time to the tail of pancreas. They then removed all of what was left of pancreas and also the spleen as it is on the same blood supply. I feel great with no limitations and it is now 2024. Although I really never think about it and just go about living life. Every once in a while I wonder when and if it will come back to lungs or other organs or blood as they cannot guarantee some cells managed to escape. I also did two rounds of Chemo and truthfully it wasn't a bad experience at all and would do it again if I had to. Anyone out there gone thru the same stuff? Just wondering what your outcome was and your story behind it.

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Replies to "I was diagnosed with bile duct cancer that went to the pancreas in 2018. I had..."

Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post treatment feel great with no limitations. I think it is perfectly normal to think, even if only periodically, about a possible recurrence or return somewhere else.

I'm tagging fellow members like @afrancesca @kjrita @egoodies @jerrydrennan @kennym who can share their experiences too.

Lori, how often do you have follow-up appointments?