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Eligibility for antibiotic therapy

MAC & Bronchiectasis | Last Active: May 21, 2024 | Replies (8)

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@circleup

Same here. . . .completely asymptomatic. Did all the imaging, bronchoscopy, biopsy, cultures and smears. The doctors were looking for something different. But i am positive for MAC. Its hard for me to believe since i have no symptoms, no lung cavities just many lung nodules. My only issue is fatigue, which they say MAC can cause.
I am newly diagnosed and the ID just sent the big three prescriptions to the pharmacy. After reading this forums post now i am afraid to take the antibiotics. Have appts with the PCP and pulmonologist, to discuss my option of doing active surveillance instead. I dont want to take medicines just to become sick from side effects. I dont know what to do since i am at this crossroad. But none of the doctors can tell me the consequences of doing nothing. Cathy

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Replies to "Same here. . . .completely asymptomatic. Did all the imaging, bronchoscopy, biopsy, cultures and smears. The..."

Cathy - Welcome to our group. There is a big difference between "active surveillance" and "doing nothing" - let me direct you to a list of the basic reading that might help you understand the choices so you can talk with your pulmonologist before starting the meds.
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
Reading some of these will lead to lots of questions - we're here to help - some of us are new to MAC like you, others have been dealing with MAC for 5, 10 or even 20 years.

Sue