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@marnix

thanks for your thoughtful and helpful replies... as an 81 woman with many years of CLL, it is my experience that you can live well with this, if you are lucky. More recently, a diagnosis of PV adds more to my blood profile, but it gives me hope that Hydroxyurea manages some of the symptoms well. I am aware and grateful that a huge amount of research is ongoing and always hopeful for cure possibilities.

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Replies to "thanks for your thoughtful and helpful replies... as an 81 woman with many years of CLL,..."

Good morning, @marnix! I remember about 25? years ago, a close friend’s mother was diagnosed with AML (acute myeloid leukemia). For her, there were no treatments except intensive chemo, which was too aggressive for her, and she quietly slipped away within a couple of weeks. My brother died at the age of 27 in 1969 from Hodgkin’s Lymphoma…there were no helpful treatments. Fast forward to present day and the 5 year survival rate for Hodgkin’s lymphoma is around 95%.
With all the amazing breakthroughs from research of blood cancers and development of new drugs, people with blood cancers such as AML, CLL, MDS, Lymphomas, and conditions like PV and ET, now have some options to help control the progression and sometimes provide a durable remission.
Potential cures involve bone marrow transplants, Car T therapy and targeted therapies such as CAR NK cell therapy, (which is now being tested on other forms of cancer).
Like you, I’m so grateful for the huge amount of ongoing research. Because of it, I’m alive through the amazing gift of someone else’s bone marrow. 😉

I’m happy to hear you’re doing well with the hydroxyurea. Better living through chemistry! Do you remember the old film clips from science class in the 60s? LOL.