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Why are there no discussions about cancer of the blood?
Blood Cancers & Disorders | Last Active: May 27 12:34pm | Replies (17)Comment receiving replies
Aransep for MDS not anemia. Since beginning of diagnosis. Keeps HGB up to 10 if possible. Another drug was used for anemia control. Too old for bone marrow transplant. Did have two blood transfusions done by quack in a killing clinic the first year. Now new (doctor 2 years) listens at Texas Oncology.
Yep can be frustrating to read where research is being done for other cancers.
A good friend has leukemia for 20 years, but is treated with care and compassion. Her symptoms are were never same as this MDS and was told it is not same. More can be done for leukemia as more research has been done on it.
One can only Hope and Pray.
Replies to "Aransep for MDS not anemia. Since beginning of diagnosis. Keeps HGB up to 10 if possible...."
Hi @mkt24, I hope you have seen all the blood cancer-related discussions, in particular those related to MDS.
See all MDS discussions: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=MDS&index=discussions
Here is a list of clinical trials currently underway for MDS at Mayo Clinic https://www.mayo.edu/research/clinical-trials/diseases-conditions/myelodysplastic-syndromes
Let me know if you would like me to change to the title of this discussion to reflect the topic of your concern.
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With your MDS you aren’t able to produce enough red blood cells. Aransep, developed for patients with anemia to increase their red blood count is helping you keep your hemaglobin count close to normal. So far, if you’re not requiring any treatment for MDS since 2014 other than the Aransep, it appears to me that you’re pretty stable with the disease.
From personal experience I know that there is a huge amount of research being done for conditions like MDS and AML, to name only a couple. I don’t know what form of leukemia your friend has had for 20 years but there are some forms of chronic leukemias that develop much slower than others, some never requiring treatment or are in an active surveillance program.
But there is a vast amount of research in this field. I can provide you with a large list of current research papers if you’re interested. My own transplant doctor is continually researching and publishing papers and running clinical trials. He’s just one of thousands of doctors and researchers globally, along with big pharma, helping to find treatments and cures for leukemia. These are complicated cancers with no simple fixes.