Hi @mkt24 There are several discussions about cancer of the blood in this Blood Cancer and Disorders group. That’s the goal of this group, to offer support for people with leukemia, lymphomas, MM, MDS, blood conditions like PV, ET…we discuss them all.
Or are you asking about why the medical community isn’t talking about blood cancers? I assure you they are. It’s a huge area of discussion, research and development. I’m a bi-product of such research.

I’m a mentor in the blood cancer group because I had a very aggressive form of blood cancer, Acute Myeloid Leukemia. I am now 5 years post treatment~which included a bone marrow transplant, and cured. So I don’t feel that we are orphans because there are no tumors to cut out. There are a plethora of new drugs that have been developed to treat many of these conditions that weren’t available in the past. Unfortunately there are no simple treatments to cure blood cancers.

If I remember correctly, you were diagnosed with MDS which has several treatments in order to slow the progression of this disease. At this time the only potential cure is a bone marrow transplant. But it isn’t always a good fit for some patients because can be quite taxing. Years ago meds for MDS or AML didn’t exist and patients weren’t around very long after diagnosis. Now, life expectancy has grown appreciably. Blood cancers are incredibly complicated. There are no drug cures yet…but I’m optimistic that they are on the horizon.

I’m sensing some frustration in you today. What can I do to help you?