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Blood Marker Testing

Osteoporosis & Bone Health | Last Active: May 22 8:02pm | Replies (58)

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@babs10

Ugh, yes. I'll ask about treatment in the MD office vs. infusion center. Did it make any difference in your coverage? Your explanation sounds correct, but yes someone will let us know! 🙂

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Replies to "Ugh, yes. I'll ask about treatment in the MD office vs. infusion center. Did it make..."

Fellow travelers: I find this discussion so incredibly fascinating. If only we could fund and conduct our own research programs. We would rule the world! There is so much research out there, and yet so little. I am weary from thinking about this ALL THE TIME…reading, worrying, exercising, supplementing, searching for yet another test, talking about it ad nauseam to my patient husband. Babs, I see you have also posted on Inspire….some very educated folks there as well. Hope someone weighs in about the discordance. I have the opposite DEXA discordance of bad spine, ok hips; but then that’s flipped with a REMS. Research is minimal, except to say that discordance is not uncommon. Verdict weak about whether that indicates higher risk fracture in itself. Ugh! My personal trainer suggests that I have paralysis by analysis, something I’m good at, and that’s spot on, BUT….that has served me well many times before. Breathe! Listen to your gut! Gut might say go for the meds or it might say…..just wait a bit longer….either is unique to each of us. My husband didn’t have the luxury of reading every research paper when he was diagnosed with AML many years ago….he was just plain dying….he put his veins out for any and all terrifying medications, while I READ about them! Sometimes I wish I could have that attitude and just go with the meds, but we have a condition that is not life-threatening, at least at this given moment in time, so it’s a good thing bad thing I guess.
Ok, enough of the overthinking….again….we must hang in there together! Oh, husband is alive and well after 13 years….was given 5% chance of two year survival! Meds are not always a bad thing…….just saying……