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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
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@sheeva888

Hi,

So sorry to hear you are juggling so many things. Where are you located? Have you seen a neurologist yet? Have you tried Valium/Diazepam yet? I am not sure how that interacts with your dementia. I hope you have an advocate by your side.

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Replies to "Hi, So sorry to hear you are juggling so many things. Where are you located? Have..."
SusanEllen66 | @SusanEllen66 | May 21 11:01pm

@sheeva888 I’ve been seeing a neurologist for years. The issue with me is that new neurological issues keep popping up and possibly overlapping.
I saw the doctor today. While I was there my body was in a full spasm. I was like, “what is this!” He said you are having spasms. It’s not Parkinson’s because I move too fast.
These spasms are getting worse all the time. I feel like there is an electric current running up my toes to my head.
I was referred to a movement disorder specialist neurologist. So now I wait for the to call for an appointment.

I hope you are doing well. What do you do to feel a bit better?

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