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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: 1 day ago | Replies (211)
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@SusanEllen66

@sheeva888 @ess77
Hi I’m looking at the Stiff Person Discussion.

I believe I have it based upon the physical external, and internal tremors I have been experiencing over the last month.
The drugs I’ve seen listed by others are not compatible with daily life for me. One Baclofen at bedtime knocks me out for 10, and
I’m tired during the day…

I also have Ataxia, and dementia…

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Replies to "@sheeva888 @ess77 Hi I’m looking at the Stiff Person Discussion. I believe I have it based..."
sheeva888 | @sheeva888 | May 19 4:20pm

Hi,

So sorry to hear you are juggling so many things. Where are you located? Have you seen a neurologist yet? Have you tried Valium/Diazepam yet? I am not sure how that interacts with your dementia. I hope you have an advocate by your side.

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