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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@maryelizabethp

Hello all my compadres. I have severe OHCM and had the surgery in 2014 at Rochester MAYO. My question is this: Has anyone taken Camzyos post surgery? I am on more prescription drugs than I thought possible, but with aging my symptoms are worsening. The fatigue is so so frustrating.

I would be glad for any information regarding.

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Replies to "Hello all my compadres. I have severe OHCM and had the surgery in 2014 at Rochester..."
Debra, Volunteer Mentor | @karukgirl | May 20 8:50am

Hello @maryelizabethp, and welcome to Mayo Connect!
I'm so glad you found this site and made your first post. I have some questions for you...
You mention you had 'the surgery' at Mayo in Rochester, do you mean a septal myectomy?
Have you been seen by an HCM expert recently?
Have you tried to contact the cardiology department at Mayo through the patient portal?
It sounds like you really need to get an opinion from an HCM expert and find out if these issues are due to hypertrophic cardiomyopathy, if these are from the medications you are taking, or just what is causing your worsening symptoms. It must be frustrating!
Are you close to Mayo Rochester? Have you tried to contact using the patient portal?

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