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How to deal with constant pain for years
Chronic Pain | Last Active: May 26 9:58pm | Replies (79)Comment receiving replies
It is very complicated! Thank you for articulating your feelings because they will help others, including myself.
You are brave and I admire your obvious work with a therapist. You definitely are coping, more than you realize or maybe give yourself credit for.
Two words really stuck out to me in what you wrote:
Optimistic
Self-validating
Congrats on working towards a level of acceptance and sharing yourself on Connect. I see you!
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I read this once.
Intimacy - Into Me See.
thanks. Writing here and other places has been good for me. I appreciate the space to drag myself out of myself. Appreciating that my coping skills are not at peak right now has in a way given myself the "right" to wallow a tad - and not force myself onto someone else's timeline. I've never let the word "cope" be part of my vocabulary.
Another word I have never let myself see is "respectful." towards me. I don't place that word as if I deserve to be the recipient and therapy has helped with that as far as living with a chronic illness. We deserve to be respected by doctors, professionals, parents, friends.... And I never knew what I was feeling was disrespected. OH. hmm. I'm starting to see. I told her a story about something my mom did to my dad when he was dying and her instant response was "wow, that was so disrespectful of her." And I felt slapped in the face with that word. She was right. It felt yucky and seeing drs who don't listen feel yucky but it's actually being disrespectful. I wonder what would happen if in the middle of an appt, and feeling blow of and not listened to if we said to the dr. "I am feeling very disrespected right now and I deserve the respect i give to you to be given back."
hmmm. I come up with good things when I write. I may try that.
We all deserve respect but when you are seens as just a PIA "chronic" (I despise that word as it seems to be about our personality as well. It's a negative energy word that describes more than just our illness. it's used against our psyche and makes us feel like a throw away person. I've said a lot of my life I have felt like a throw away person. That's from being "chronically ill" since I was 23. And you know, we deserve respect. It's time for us, well for me! to see that blow off as disrespect by our doctors. I wonder what their response would be. I can't imagine that it wouldn't make a dr. shush and listen. And if not, that's about them, not about us and their feelings of us being a child PIA when really I'm a 69 yo woman...Yeah, We deserve respect. It's time to claim it maybe.
OK. again, space to flow my mind and empty out and maybe get someplace to de-depressioning and self-advocacy in a different way. Hooo Ha. self-respect and respect. demand it. thank you.